The Inspiration - Our Little Bug |
| Born August 2, 2002, Christian Eilam Sorenson, looked fabulous and perfect, it was hard to believe that he had a fatal heart defect known as Hypoplastic Left Heart Syndrome (HLHS). |
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Due to his condition and his unique anatomy he needed a heart
transplant, |
which he received at nine days old on August 11, 2002. We were told this would give him the best chance at a normal life.
Get the rest of the story..... |
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Our Mission |
To direct the fight for the prevention, treatment and cure of PTLD - Post-Transplant Lymphoproliferative Disorders through global/international, cutting-edge research, and to empower children and adults with PTLD disease and their families to live fuller lives by providing them with compassionate support, education, advocacy, and hope.
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| What is PTLD? |
| These disorders are an important cause of morbidity and |
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mortality after solid organ transplantation and are especially frequent in children.
Learn more... |
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Our Challenge to You |
| Register - - Volunteer |
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The 2nd Annual
Christian Eilam Sorenson
Motorcycle Ride
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